Approximately 300 million people worldwide are living with a rare disease. B.C. residents Courtney MacMurchy and Barbara G. are two of them.
In light of International Rare Disease Day on Feb. 29 – the rarest day of the year – Barbara G. (who has requested to keep her last name private) wants people to know why the day matters.
“Since my diagnosis, I’ve found it very difficult to find not only support but advocacy for people with rare diseases,” she said.
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